An amazing e-mail...

Hi Alana,

Don't know if you remember me my name is Cassy we met at Sick Kids in the opthalmology clinic. My son Eli is has Saggital Synostosis. I have been following your blog and noticed that Spencer has a surgery date. Eli has one also, June 7th a few days after his birthday, his birthday is June 2nd so at least he will be able to enjoy it. So glad to hear that both of our boys don't have any pressure and both have healthy optic nerves. YEAH BOYS!!! I just wanted to tell you how much I am enjoying your blog. I know that I only met you for a short period of time but you know whatt they say. "Actions speak louder than words." and your actions through your blog shows a lot about you. And I am accurate in saying that I can tell that you are a very giving person to share you and Spencer's story and journey. I can't even begin to express to you how much you have helped us through this. I just wanted to say thank you for your time and effort with all of your research and most of all your bravery for sharing your and Spencer's story. Please keep posting during Spencer's recovery I would love to continue to see how he is doing. Eli is now crawling and into everything. The good thing is I'm losing weight as I am chasing him all day long. LOL!!! So have fun when Spencer starts.

I'm not very computer savvy but I will figure out how to send you some pictures of Eli's journey. Thanks soooo much for all that you are doing.

Thinking of you and Spencer

Cassy

Dear Cassy,

First of all, of course I remember you. It was a pleasure meeting you and Eli. I'm so glad to hear that your son doesn't have any pressure and has healthy optic nerves as well, what a relief. I'm also glad that I could help you through this most difficult time. Thank you for your kind words. It is not easy to write all the time but knowing that I am in fact helping people makes it a bit easier.  Now that we have a surgery date it makes everything all the more real. But I am going to continue this no matter how hard, so that I can help as many people as possible and create awareness about Cranio Synostosis. Spencer will be having two appointments in May, one being his anesthesia appointment and the other being his CT scan. Has Eli had these appointments yet? If so, how did they go? I would love to stay connected with you and be kept up to date with Eli's surgery and recovery as well. On a happier note Spencer is doing the army crawl as well and is probably days away from crawling. I can't wait, he is such a busy little boy already. I have a feeling he is going to be my trouble maker and get into everything...LOL...

Anyway, please do keep in touch and I wish you all the best with everything.

Thinking of you guys as well.

Alana